Fortune Teller : Function-Disfunction


When I left the hospital with Grady, no one handed me a glass ball to rub my hands over, or a magic eight ball to ask important questions to or a business card to the local Fortune Teller. No, we left the hospital with a little baby boy, who deserves to just be a baby, free from inspection, expectation, pressure, examination and generalization. Free from open-ended questions.

So when I get the “is he high functioning” or “what level is he at”… I kind of cringe. What does it matter? and if I told you “low” (or whatever that is) what would that accomplish. He is just the way God made him, each thread of his being has purpose. Sometimes, I think people like to hear that he is “high functioning”, as it takes away from the surprise blow that he has down syndrome. It makes it “ok”. It numbs the awkwardness I see in their faces. Somedays, I tell people what they want to hear because it’s easier that way.

1 Samuel 16:7 “For the LORD sees not as man sees: man looks on the outward appearance, but the LORD looks on the heart.”

Hang in there with me for a moment, follow me…

 

Grady has down syndrome, he in some way shape or form will show delay, he already has. He may not talk till a little later and when he does he might talk “different”. Β Grady may not walk until a little later than his peers, but he will get there.

Today, Grady is 9 months, we are not fortune tellers, and their is no way to tell where he will fall as far as functionality. Just like I don’t know if Mason will cure cancer or become a dad at 16. Just like, I don’t know If I will die at 28 or 88, only time will tell.

Today, Grady is still my baby, and when the day comes when we realize if he is “high” or “low” functioning, you bet your bottom I will love on that child no differently. We will encourage him, love on him, expose him to new things, and fill in the cracks that society leaves with endless love.

do you follow me? can we be ok with either way… because we trust in HIM with HIS Β work. Grady is not mine in the big picture, he is God’s… so I will be thankful for another day to just be his mom. I function just fine that way.

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10 thoughts on “Fortune Teller : Function-Disfunction

  1. Anna Theurer says:

    Hello Erin! I am new to reading you blog, and I have to tell you that I love it and the beautiful pictures of your children. I have a 14 month-old daughter Ellie with DS and today’s post has put all of my thoughts into words. Thank you for saying what needs to be said and so eloquently.

  2. patsy says:

    erin–i am so glad you found our blog! your pics are amazing…i LOVE the 9 month pic of grady in the basket!! he is a doll, so cute! his sweet rolls make me miss my maggie’s rolls..when she stopped nursing ay 14 months she started slimming down 😦 i look forward to following your beautiful family. oh and i aslo love the pic of grady as the turkey in the pot !

  3. Erica says:

    I couldn’t agree more! Everyone wants to always compare babies and the rate at which they are reaching “milestones”. We should just love on them and let them be the precious gifts from God that they are : )

  4. Courtney B says:

    Thank you for your thoughts on this subject. Working with children, people will compare every child with or without a difference. Grady is going to be compared more to other children but people really don’t get it. My cosuin is in his 50’s and goes to work each day. He lives with his sister but cooks, cleans, and takes care of the majority of his needs himself. She monitors him but he has Down Syndrome and he is and always will be OK regardless of his functioning level which his mother was told would be “the lowest and still moving” when he was a child.
    Please remember to be proud of yourself for looking past the stereotypes but understanding them as well. You have a great strength many woman do not.

  5. Patricia says:

    I am so blessed to have Grady Wayne in my life. All I know is that there are days when I hope no one is watching how I am functioning. ” Judge Not”

  6. Susan says:

    No one asks me what my IQ is or if I function high or low. My 3 kids with DS are all doing fine right where they are. Loved the pictures. susan

  7. Kelly says:

    Loved this, Erin! Never even occurred to me to ask a question like that. I just think Grady is perfect just the way God made him! πŸ™‚ xoxo

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