Eye Accessories are all the Rage? Didn’t you know?
We went for Grady’s Initial Eye Evaluation yesterday. Grady’s eyes are absolutely my favorite part of his beautiful face and any chance I get to photograph them just steals my heart. As one friend said it “They are like windows to the world”
Grace is moving within me for sure as we ventured through the appointment, from start to finish. No fear, no anxiousness and my blood never reached boiling point, when usually it would. Grace.
Phil 4: 6-7
Do not be anxious about anything, but in everything, by prayer and petition, with thanksgiving, present your requests to God. And the peace of God, which transcends all understanding, will guard your hearts and your minds in Christ Jesus.
They diagnosed him with Far Sighted-ness, Strabismus & Astigmatism with a re-check in 6 months:
Strabismus- (eye misalignment) is also more common. Family members may notice that the eyes do not line up well with each other, but often the strabismus can be subtle, even to the pediatrician. The folds of skin I mentioned between the eyes and the nose can also cover up the underlying strabismus, or make the eyes appear as if they are crossing even if they are not. It is important to diagnose strabismus as a child, as crossed eyes can result in amblyopia (loss of vision also known as lazy eye) and loss of stereopsis (the use of the two eyes together, or depth perception).
LONG-SIGHTEDNESS (HYPERMETROPIA)-About 40% of pre-school children with Down’s syndrome are long-sighted. This is often associated with a convergent squint. These children have to use extra effort to focus their eyes and this is more of a problem for close vision.ASTIGMATISM –About 30% of pre-school children with Down’s syndrome have astigmatism. This means that the image seen is distorted because the image is more out of focus in one direction than the other. The astigmatism can be either long-sighted or short-sighted or a mixture of the two.
The Kicker- Insert Grace here.
I asked a few questions, mainly for curisotiy purposes and the fact that I am so new to the world of eye accesories that I may have come off naive on the whole topic. I continued to ask the eye doctor if Grady is a candidate for Contact Lenses: She said ..No, typically children and adults with Down Syndrome are unable to keep up with the responsibility of cleaning them, eye drops ect…
Then I asked, if Grady can someday get eye corrective surgery when he is older so he doesn’t have to wear glasses? She said … Usually with Down Syndrome, especially boys, they just don’t care enough to think about getting the surgery, these things don’t matter to them… then to top it off she told me …Plus they can’t take care of themselves after the surgery, eye dropss, eye patch and regular after surgery care..
I was calmly ready for the debate, I didn’t have to roll up my sleeves or anything, but I was ready to tackle her comments. She pretty much threw us in a “Disabled Box”… Yes, I am realistic about eventual delays..yaddah yaddah yaddah. Please don’t go discounting my son’s future desires and wishes or my own for him.
Amazingly my blood didn’t boil and that is by God’s Grace alone, I gracefully responded to her remarks and “facts” with … I guess you really don’t know though do you? she repeated what I said back to me agreeing, and realized that she opened a can of worms and quickly exited the room.
Today we learned that there is a good chance you will be wearing glasses in a few short years. And if someday those glasses get in your way when your competiting in the Special Olympics…or you want to go on a Hot Date and don’t want to wear them any longer, or if the get in your way when you want to lay a kiss on that pretty lady…we won’t let anyone tell us you don’t have the ability to care because if you do, WE will find a way.
If that way is corrective surgery, I will take care of you afterwards, I will put those drops in your eyes…I will do anything possible to help you in this journey we call life. The “Ski’s” the limit little man.
Meanwhile, I can’t wait to see you in those glasses. You are going to look adorable. When I was younger I wanted to wear glasses sooo bad, so now I have just one more reason to live vicariously through you. It’s a good thing.
I love you,