Oh this is the stuff you told me about, the frustrating heath stuff that sometimes comes along with Down syndrome, this stuff, that for 6 months God so mercifully sent on a detour. Maybe because he knew my strength and weaknesses, because he knew me so completely as a mom, and spared me 6 months. Maybe it was time to knock me off my tuffet into the world of a bunch of co-pays and doctor visits that left me with not much answers and pediatricians scratching their heads. Until now.
So that upper respitoary coughing that has been going on since the beginning of July (typical Down Syndrome cough so says the pediatrician for over a month) has manifested itself into Bronchiolitis & bronchospasms. What happened according to his Pediatrician is that the excess “snot” that our little ones happen to produce dripped down to the back of his throat and he was unable to clear it properly due to his lower muscle tone. Then his (out of nowhere) reflux that recently showed up started to irritate his bronchial tubes along with the “snot” leading to inflamtion and now bronchiolitis. I am terrible with medical terminology so bare with me.
His reflux has been so bad he was spitting up, sometimes projectile sometimes clumpy about 30 times a day. Leading to a 9oz. weight loss this last week. So we put him on baby Zantac yesterday. He wasn’t taking his Albuterol very well orally so we switched over to a nebulizer. I am new to this nebulizer thing, but as a mom, I HATE IT. I know a lot of kids have used it, maybe not a big deal for a lot of people, but for me … it makes my heart hurt. He is also on prednisolone …a steriod to decrease the inflamation of the bronchial tubes.
We got a chest x-ray to check out his lungs for aspiration and heart for any possible abnormalities that perhaps we have missed in the past ( since Grady has had an increase in sweating) …Everything came back GOOD! Amen.
So here we are Saturday, Grady actually has been taking to the Zantac well and spitting up has decreased, but his “Happy Hacking” I call because he smiles through it, is still there and going strong. I am focusing on feeding to regain the weight lost and extra TLC. Doctor didn’t want to see anymore weight loss otherwise we are looking at admittance as a possibility on Monday.
Thank you all who have been praying for our Little Grady. He is doing better, those who have spoken good upon him and healing. The prayers sent to me have encouraged and lifted me up. Because I won’t lie, it hurts beyond measure to see my Grady struggle. Thank you again.
On a happier note here are some pictures from this morning. I LOVE MY SONS! Praise the Good Lord!