Happenings & Park Bench Prayers & Lots of Pictures


We have transitioned into therapy  twice a day …two days a week, Tues & Thurs. It works out well since Paul is off on Tuesday’s …I only have both the boys by myself on Thursdays when therapists come. We almost have a complete team together, as we are once again switching Speech Therapists (3rd time). I finally found someone who has great experience working with infants with Down Syndrome (not just infants or just Down Syndrome)…she starts next month. Whew.

Paul has transitioned into the day shift, and we are having a blast leading a regular work schedule life. Yes, the pressure is on to actually cook dinner every night. Some night I fail miserably, but I am so blessed with a great husband who is ever so willing to eat Pizza! My primary blogging time used to be at night when Paul was at work, so now I am transitioning into Nap time. Paul and I get to wake up before the boys and enjoy coffee and prayer or reading time. I can already feel our marriage coming even closer as we share this time together in the morning…..I am on cup #2 by the time my 2 little men arise, its a beautiful thing.

Mason wanted to read his bible at the same time as daddy! too cute!

We try to go to the Y as a family  Tues & Wed evenings together. Paul took an aquacize class with me and although the rest of the class was not aware that we were competing, we had a blast whooping butt! I love embracing my competitive nature with my husband even if it includes a noodle and weird eighties music. Mason has started swim lessons and Grady has even gotten in the pool as well! He  loves it. I hope to get him in lessons at 6 months. I mean we need to start training for the special olympics right? We have a gold medal contender here 🙂

………

A rather obvious revelation I have come to…. we really are what we read. What we decide to read and fill our mind with in one way or another begins to consume, shape and direct our thought pattern. I always discern but way to often hit a stumbling block. As usual I sometimes spend a little too much reading about Down Syndrome and other’s experiences. Most of the time it is great, and sometimes it a whole dose of stuff that I’m just don’t need to hear right now. I am totally part of the “just because we share an extra chromosome doesn’t mean all of our experiences are going to be exactley the same” club…(i bet you’ve heard of it)…..

….Recently  I stumble upon a post of  negative experience. Automatically I want to disregard, get angry and retaliate. But once again, God intervenes in my heart and a lesson is learned, a new prayer birthed. So I am actually thankful for this mind consumption of negativity because I was able to jump just one more hurdle before we got there. Probably unneccesary at this point in time given all that I deal with in my life, but like I said…we are what we read. So at least I can digest this and move forward.

I read of another mom’s depiction of her life with an adult daughter with Down Syndrome. She described the financial strains in her later years, missing a vacation because of not wanting to burden family members to keep an eye on her daughter, having to stop in the middle of a park with a stubborn exhausted daughter who doesn’t want to move, and the depression that followed her years with her daughters struggles. She spoke of her daughter never having children, driving or college… not to mention possible mental illnesses and isolation that can occur with adults with Down Syndrome. And lastly she wished her daughter did not have DS. She of course mentioned the love and admiration she had for her daughter but not without dousing us with her stark reality.

Are all of these situations she described possible realities for our future with Grady? absolutely. Do they scare me? absolutely not.

So like a monkey on my back, her words followed me and found a way to rustle up some emotions and thought. All eventually leading to a prayer and a post.

Just one Prayer upon many ( I can only tackle one at a time and not in my own timing) but I was lead to her visualization of trying to lug her 100+ pound daughter around the park, when her stamina by Down Syndrome nature is a bit low, and being stuck on a bench in the middle of a park….

…So if when we get stuck on that Park Bench and our possibly stubbon Grady doesn’t want to budge…. prepare my heart O Lord with patience and understanding. Let us celebrate that moment in prayer and thankfulness and find stillness in the moment. O Lord reveal to us in those moments your purpose and presence.  May the birds sing a sweet song that day as we breathe in the air with thankfulness for you have granted us yet another day and another moment together.  Slow our hurried and selfish lives and just be.

Let me be reminded by your word :

1 Corinthians 13:4-6
Love is patient, love is kind. It does not envy, it does not boast, it is not proud. It is not rude, it is not self-seeking, it is not easily angered, it keeps no record of wrongs. Love does not delight in evil but rejoices with the truth.

Reveal to me the season that you have us in Lord and take from me my selfish ways now in preparation for those moments that you have planned for us. Let our life be a testament to your Glory.

Thanking the Good Lord for Today!

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7 thoughts on “Happenings & Park Bench Prayers & Lots of Pictures

  1. Melissa says:

    That post got to me too. Yes, I know it’s a possibility, but I’ve also learned in all my reading over the last 6 months that the same extra chromosome doesn’t guarantee the same experiences. Your prayer spoke to my heart, and I know I will be back to read it again.

  2. cinnamon says:

    Thank you for this post. I agree that you are what you read and I try to surround myself with the positive. I am a mom, 31 weeks preggo, with a prenatal diagnosis. I am nervous, anxious, excited, etc and have been trying to focus on the positive. The negative post that you mentioned really messed with my head. I have spent the last week and a half stewing over it. Thank you for putting some perspective and love into your post. Your words are encouraging and your family is beautiful.

    • skiingthroughlife says:

      I too have been stewing, i had to post something because I knew someone out there was pulling their hair too ( I was right)…we have to stick together and keep our eyes on the goal! Please keep me updated on your new baby, your going to be soooo in love! ! how exciting!

  3. Susanna says:

    “…So if when we get stuck on that Park Bench and our possibly stubbon Grady doesn’t want to budge…. prepare my heart O Lord with patience and understanding. Let us celebrate that moment in prayer and thankfulness and find stillness in the moment. O Lord reveal to us in those moments your purpose and presence. May the birds sing a sweet song that day as we breathe in the air with thankfulness for you have granted us yet another day and another moment together. Slow our hurried and selfish lives and just be.”

    YES, YES, YES, Erin!!!

  4. christi harrison says:

    cute pictures! you have such a beautiful family!

    I try not to worry about the future. What good does that do? It might be hard but worry about it now will not change that. And, who knows, it might be the best part of our lives. I’m betting on that!

  5. erika says:

    “I am totally part of the “just because we share an extra chromosome doesn’t mean all of our experiences are going to be exactley the same” club…(i bet you’ve heard of it)…..”
    I am part of that club

    others negatives opinions and experiences do not faze me. I have my faith in God and prayer to help me along the way. Besides, I love my Ethan, extra chromosome and all.

    Life is what you make of it. I am eager for a lifetime with my children…

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