4 months already, and I like it here. A lot.
Ok, so I find myself asking this question to myself all the time, “does he really has down syndrome?.” Am I still fighting all the preconceived notions I had from the past on what a child with Down Syndrome should be like? Am I in a state of denial?..the answer is NO. I just think my love for this child goes far beyond my own understanding and ability to process, my blind love for this child is a gift from God, my love this child knows no boundaries. I have fallen into a state of comfortableness with him & the diagnosis, I wouldn’t take away his extra chromosome if it was a choice and have I mentioned I like it here…a lot.
Now don’t get me wrong I welcome the opportunity to educate others about Down Syndrome, but I am still equipping my motherly self with ability to tackle often unknowing ignorance. So when I get caught up in a conversation about Grady and his diagnosis, with the questioning acquaintance, who is ever so interested in his intellectual/functional… abilities/potential, I listen to myself talk about his varying eventual delays and dumfound myself. It’s not easy to speak of eventual delays or functioning levels at this point. He is my baby right now. But I’m a realist, so I push forward with the facts and knowledge that I am equipped with.
Would that questioning aquentenance ask the mother of a typical child if they are “high or low functioning? or will you be putting him in regular school”. As if I am a fortune teller they look at me for a response..pause…wait, wait….pause….can you say AWKWARD? My mind reals for a quick response and an even speedier way to change the subject. It makes it easier for other’s to already put him at the high functioning mark, maybe to ease their uneasiness, maybe because like me they find it hard to believe that this precious child shows no visible intellectual signs of being delayed at this point. Who knows, but really… these questions challenge my patience and bring me to the point of begging God for his Grace. My usual answer that doesn’t come so easy, my answer that tears me up to have to explain, my answer that rests assured in God that he will provide: Grady based on his diagnosis will eventually at some degree show a sign of delay, but at this point we are working vary hard to equip with with all the right therapies, support and love to offset them. We will not know where Grady stands until he is a bit older, so at this point, we love on him and embrace his every milestone just like any other baby. We try to focus on today and the positive. Keeping in mind the bigger picture and goals.
Grady is smiling up a storm.
He is rolling unassisted.
He giggles assisted : i.e. mommy doing backflips and making silly faces/sounds to encourage giggles
He weighs 14lbs 14 oz. and is 24 inches long. 75% on the Down Syndrome Growth Charts. (the over-rated growth shmarts charts)
He continues to sleep through the night.
He can now make it through a full 45 minute PT session.
He has fully mastered being a lovable and happy baby.
I try not to determine (with ever Christian thread in my body) the degree of functioning of all the silly typical grown people with the absurdly awkward questions. Could you imagine. While we are on the subject are you high functioning or low functioning mam?… probably mild to moderate right? are you integrated into society yet? Wouldn’t that be a function malfunction!