For a time now I have been bracing myself for someone to say something that would rock my maternal soul. Today was that day. This is part of our journey with Down Syndrome and part of our story but it will not Define it. I’m feeling a breakdown tonight because I am reminded that my bubble has burst and there is no safe zone outside these four walls. God remains to carry me and be the solid ground when the world begins to shake, he becomes my safe zone. The world in general is uneducated about Down Syndrome and as humans we are flawed and fall short of Grace this I understand. But in the midst of excuses made, a child is a child, a baby is a baby …extra chromosomes or not in no same sentence is their room for the word sorry and baby.
My son has down syndrome. Please do not say… “I’m sorry”. I understand your intial reaction was not thought out or the news took you by suprise, but he is Life sent from God, please do not say… “I’m sorry”. He was packaged by God just like you and I and is no different in his eyes, so please dont say … “I’m sorry”. We are not sorry. Do we look sad or sorrowful? read my smile, see my motherly glow, look at his tiny hands and feet enclosed in my cradle, his pink cheeks and milk glazed face… We are not sorry.
My son has down syndrome. Please do not say… “I’m sorry.”
If you are reading this please share this knowledge with others, you will help to spread and advocate for new moms everywhere.
“I’m sorry’s” are better saved for funerals, after you have tripped someone by accident or being late for an appointment.
Advocate for Grady.
1 Samuel 16:7
“The LORD does not look at the things man looks at. Man looks at the outward appearance, but the LORD looks at the heart.”