A semi quick update: We cleaned our house from top to bottom for the arrival of the County case worker, Speech Therapist and Physical Therapist who would be perfoming Grady’s Early Intervention Initial Evaluation. I thought focusing our energy on a clean house would take away from my pre-eval anxiety. I have to say it is bit odd to think that your newborn son can be ranked, graded, compared and scored at one month of age. But they came, and so they did… the evaluation took about an hour and half and within that time they were able to asses Grady’s development on various levels. I am awaiting the final report (so please excuse my lack of terminology or knowledge) but at this point in time, Grady scored exactley where he should be on the “typical” baby charts. It is my understanding and knowing that as he gets older he carries the possibility/likeliness to begin to fall behind given his diagnosis. But at this point in time we are at an even playing field and we are going to work hard to maintain the best we can. Grady is strong and able right now, and he flexed all his newborn skills for the evaluators. Who knew that you can hear vowel sounds come out of a newborns mouth when they are grunting. The fact that he sleeps through the night gave us an advanced marking! Sleeping Champion of Early Intervention. GOOO Grady. I want to post more about testing and such when I get the full report. They want Grady to decrease his feeding time because it has been assessed that he takes to long breast-feeding probably due to his lower muscle tone. BUT… Mason and I would breastfeed for 45+ per session as well, but I didn’t have anyone tell me otherwise and well he gained weight so I never thought twice. They recommended Speech therapy once a week to work on his feeding time. Physical Therapy twice a week to build his tone and maintain his progression. Special Instruction once a week (I am still waiting to get the overall description of this service) and then for 6 sessions Grady is getting Baby Massage. So that is a total of 5 sessions a week. Wow.
The Ski house might have more burnt toast in the upcoming weeks, oh and mainting a clean house for all our new visitors should keep mommy’s mental (in)sanity in ship shape.
Weight Check: Grady weighs 9lbs 3 oz… he gained 1pd 9oz in 2 weeks. So I guess my drawn out feedings are working! Gooo Mommy.